CP24 - All of US Research Program: Assessing Digital Challenges on Participant Completion of Online Surveys

Poster Type: Research

Primary Funding Source: National Institute of Health

Category: Patient and Community Engagement

Research Objectives: The All of Us Research Program's mission is to advance the science of Precision Medicine and ensure that everyone shares its benefits. It also seeks to maximize effectiveness by considering individual variability in genes, environment, and lifestyle. Cooperative Health was selected to participate in this National Research.

Study Design/Methods: Inclusion criteria: An active Patient of Cooperative Health , age 18 and older with decisional capacity to consent.

Enrollment process included digital completion of portal account creation General Consent, EHR consent, and basic surveys, Physical Measurement and Bio-specimen collection. A Gift card is provided for participation.

After 90 days of enrollment, participants receive a notification (email/text) to complete new online surveys using tablets, smart phones or computers. That information is relevant and necessary for Scientific Research Studies

This project is aimed to assess challenges encountered with the use of digital components in the Research Program of a Community Health Center.

Principal Findings and Quantitative/Qualitative Results: As of December 31,2019, a total of 1468 participants were enrolled and eligible to complete New Online Surveys. When analyzing the preliminary results, data showed that 42% completed online surveys. 75% learned about the new surveys in the Clinic during a provider visit and completed with assistant from program staff. 85% required resetting their password and 60% security questions, both with assistance. Black/African-Americans completed surveys in a 36% rate, Hispanics 56% and whites 7%. An average of four types communications were made before completion of the surveys.35 % of the participants changed the communications preference from email to text.

Conclusions on Impact on Health Centers: The All of Us Research Program at Cooperative Health continues enrolling participants with four clinical sites.

From 1,468 participants enrolled (up to December 31,2019), the majority (85%) needed assistance /facilitation completing the online surveys. 75% completed online surveys during their provider visit. Resetting passwords and security questions were the most frequent issues (85% and 60%, respectively). Some participants preferred Text over Email as a communication tool (35%). New strategies for successful survey completion have been recently implemented. However, further evaluation will be needed at a later time.

Author(s):

Carolina Rodriguez-Cook, Engagement and Outreach Research Coordinator, Cooperative Health